Saturday, December 3, 2011

Ruby Tuesday's

Me:
All you can eat salad bar/buffet- I took 2 trips-full plate of salad.  Great selection.
Loaded baked potato-attempted to share with Eli-he wasn't super interested
Water

Andy:
Ruby Minis: 2 small mini cheeseburger with fries
Added on salad bar-he also took 2 trips to salad bar
Water

Eli:
He ate one of Andy's minis and fries
He had some veggies from my salad
Milk

The bill was <$20. We both walked away FULL!  Like Rolly Polly full.
They had more gluten free choices on the menu, but I just felt like the salad. 
=
SUCCESS

Friday, October 28, 2011

Denial

I still don't really think I have "it".

It's going to take a long while before I reach the acceptance phase.

Saturday, October 22, 2011

Twinkie

Today I went to a gluten free bakery called "Molly's Bakery".  It is tiny and sort of out in the middle of no where. It's attached to a small gluten free grocery store.
I bought a few fun treats.
But the highlight (I can say that now but haven't tried everything yet) was the "twinkie". 
It is to be known that I have not had a twinkie for probably 15 years (at least).  This is  not something I crave. BUT!  Earlier in the week I got a recommendation to try the "twinkie" which basically looks like a skinny, long donut that has a white cream filling.
I only bought one (they usually sell them in boxes of  4) because they are a fresh bakery item.  These are not something that I could buy a box of and then slowly devour over 3 weeks. 
I told her I was going to eat it on the way home in the car, if I could get away without my son seeing it.
She laughed and told me not to take a bite until we were 1 mile out.  She said so many buyers pull out, and right back into the parking lot to buy more because they can't resist after that first bite.
So again...not a huge twinkie fan...but this freshly baked, twinkie-like, yummy treat was perfect.  A true treat for pregnant ol' me.  Great consistency. Awesome flavor.  I'm sorta glad the bakery is far away so I can't indulge.  But man!! What a success.  Thanks "molly"!!!!

Saturday, October 15, 2011

Rant

It drives me nuts....

I just want to make a simple recipe. We went to the pumpkin farm today and bought a bag of nice, yummy apples. My plan was to make an apple crisp to have with icecream tonight (for sweetest day?).  I can just imagine the smell it will create in our house.  And the warmth of eating it with some yummy vanilla icecream.

But looking up a gluten free recipe for apple crisp just bugged me so much.  Just because I have Celiac Disease doesn't mean that when I make a gluten free recipe I also have to be dairy, soy and egg free. No-I just would like it gluten free please. No I don't want it gluten free. I need it to be gluten free. Big difference. I really WANT a regular piece.  But I don't need it to be a healthier version, or other allergy free versions. I want real butter with real brown sugar etc for my 1 time a year piece of apple crisp.

I must have looked at 15 recipes (at least) and all of them either had some other sort of dairy/diet accommodation or it contained 3-4 ingredients that are expensive and I don't stock (yet) because I don't know how to use them.  Sure, I can spend a few random hours shopping for these ingredients and then making the recipe, but if it doesn't taste good to me, if it doesn't taste like apple crisp, if it's "ok" but NOT apple crisp in my heart, mind, soul-then I don't want to waste those hours. I will just get frustrated.  Those who know me, know I don't have hours to spend just playing around in the kitchen.  I WILL throw it across the room if it doesn't turn out.  (I did control myself when I tried making biscuits -from a mix none the less- and they didn't rise. They were literally cookies/hockey pucks).

I'm a dietitian. yes I like to be healthy. But when I"m going to have my 1 apple crisp for the year-yes I can control myself to 1 occasion-I want it to be good.  I don't want it to be an "ok" version. When I say it's an "ok version" that means it's edible.  It's a different dessert. It's NOT apple crisp. 

So...I need xanthem gum, arrowroot, brown rice flower, almond flour, gluten free oats, or a gluten free cake mix (5$ a box!).

Yes, I can make something like this.  but I know deep down it won't do it justice. Not to me anyways.  I want the REAL thing. 

(I wrote this in such a fury you would have laughed at how many spelling errors there were!)

Friday, October 7, 2011

10 hour day

At the beginning of the week I took 20 minutes and planned out our evening meals for the week.  I took the list to the grocery store and made sure I had all the ingredients I needed for each night.  This would prevent me from using an excuse to not follow my weekly "menu".  Monday and Tuesday went as planned.  Wednesday I worked a 10 hour day which meant I was out of the house by 6 am and didn't return until 5 pm.  I had been on my feet for the majority of the day.  I texted at least 2 people and said "screw that stir fry. I'm not going to stand there and cut everything up". What poor planning.  Note to self-don't plan a tedious meal on my 10 hour days.  But I came home and there was Andy  Superman peeling, washing, cutting, chopping veggies AND keeping E happy.   I did the rest. And I'm proud of it. Eli and Andy both scarf the stir fry, no matter what I put in it.  We always make enough for leftovers for the next day. 

The best part-it is very easy to make it gluten free.  As long as you have gluten free soy sauce and you don't use any glutened ingredients to thicken the sauce-you're home free.  Recently our secret ingredient is just a touch of peanut butter.  Who wants some?

Thursday, August 25, 2011

Snap and pop

Remember my post a few months ago about gluten free Rice Krispies?  I tried them tonight.  Andy bought me a box and I smiled huge.  I've never been a huge Rice Krispie fan, but anything that adds variety with familiarity makes me happy. 

Do you think Rice Krispies are a sweet cereal?  I never thought so.  They were almost boring to me. I like a cereal with granola, nut clusters or crunch.  But like I said-I was excited and had expectations that this cereal would taste identical to the original (something I'm always seeking). 

Unfortunately it didn't happen.  They are definitely tolerable, doable, eatable.  But now I realize why Rice Krispies taste sweet....the malt in them that are taken out of the gluten free version is probably what is used to "flavor" Rice Krispies.  So although they were 80% similar in texture (and yes they snapped and popped etc) they tasted almost identical to Rice Chex cereal.  I'm sure you can't imagine the difference.  And if you are anything like Andy, if you tried it, you still probably wouldn't notice the difference.  But the longer I am "sober" of gluten, the more I crave that old taste.  I'm hoping years from now, I will forget what those flavors and textures were like in my mouth. 

Don't worry. I'll still eat the whole box.  But I might add banana or nuts to it. 

Wednesday, August 24, 2011

The Sick One

Last night I met a couple of awesome ladies out for dinner. We ate at an Italian restaurant that has a great deal-purchase an entree and bring another one home for the next day.  We were all excited and made out on the deal!  The best part of this ITALIAN restaurant is that it's not painful for me-b/c they have gluten free options.  And they make you feel confident because they have the chef come out and talk to you and he/she knows what they are talking about.  I had the fettuccine alfredo and ate the WHOLE bowl.  I brought home the baked ziti.  They offer a rice fettuccine noodle and a corn based rotini noodle that they used in place of the ziti.  I was in my glory. it was a true treat.  
I ate 1/2 of the ziti for lunch today and beamed. It tasted so "normal".  But eating at any restaurant comes the risk of getting sick from cross contamination.  It sort of looms there. I felt good all last night and this morning.  After lunch (I had the day off) I took a little nap and as soon as I woke up, I knew I was going to be sick.  Disappointing.  I want to blame the restaurant but I really don't want to either.  I've been really good to not take many chances because that is frowned upon in a major way during pregnancy.

Either way....I have lately been feeling yucky about getting sick every once in a while.  Sometimes it's after eating something that could be questionable.  Sometimes I think I should have read the label a little more closely or looked up an ingredient instead of just assuming. Sometimes I can't figure it out at all. It's not happening daily or anything, but enough that it's frustrating.  Andy's pretty good about it but doesn't know what to say.  What bothers me the most is that when you throw in this diagnosis, the Swine flu I had a few months ago, and now pregnancy, I just feel like I'm sick all the time.  Andy is always asking me how I'm feeling.  I sometimes have a complaint. He is never sick. He never gets an upset stomach. He never feels fatigued, has headaches (unless he had a lot to drink the night before)or has to question what he ate with confusion.  I just never wanted to be the "Sick wife".  I don't want him to feel like he has to put up with me. I want everything under control.  I don't want him to regret or feel like he has to take care of me.  I want to be a strong, independent woman who is confident about a lot of things.  Getting sick makes me feel the opposite.

It's just a different aspect of having a disease I guess. At least it's not fatal right? I wonder if other Celiac's feel this way.

Friday, June 17, 2011

Is this gluten free?

I read this the other day and thought it was hilarious.
Anyone who has a food allergy or a family member who has one understands the importance of reading the ingredient label.
Here are the simple step by step directions for how to do this, followed by how your heart/mind reacts when reading, followed by the final directions.  It made me giggle as this has happened to me-the last (or last few) ingredients are always a disappointment.   Usually it is something as simple as malt flavor right near the end...


Pick up box
Turn wrist
read ingredients
yes yes yes yes yes yes! yes! no
Put back on shelf

Monday, June 6, 2011

The List

Lately I have been doing a lot of joking about Celiac Disease and the Gluten Free Diet.  Anybody that has a complaint-I usually tell them that going gluten free will save their life.  It's a little bit sarcastic. Ok a lot sarcastic.  I say it because going gluten free didn't really change anything in my life. 

But I remember when I first was told I might have it.  Being a dietitian I was totally flustered.  I knew what I was in for, but I wasn't ready for it.  I spent every night in bed with my lap top researching what my test results meant, how an EGD is performed and looking at statistics.  I came across a website that DARED to list all the symptoms and other diseases associated with Celiac Disease.  It's not funny.  Not at all.

But since I'm still not accepting that I really have it-I use humor to cover it up...sorta.  (I think most people can see right through me). Many books will list the classic 10 symptoms and then go on to describe how people can have 1 symptom, no symptoms or 32 symptoms.  Yes 32.  That means there are more than 32 symptoms or diseases associated with celiac disease.
Try 300.
Look for it...just try. Look for YOUR symptom.  I'm laughing now.  If you complain about any of these symptoms-you should just go gluten free.  (I'm seriously joking).
But this is a real list from a website (not a book because that would be a boring book.).  I'm not going to let myself start worrying about everything on this list, like if I will have a down syndrome baby or if I will develop some weird cancer or difficulty concentrating....
Of note: I do see a lot of symptoms that I had/have.  Balding, overly self critical, psoriasis, increased appetite, chronic fatigue, having a baby with IUGR....  but no matter how hard I looked there just was no connection to being flat chested and having celiac disease. DARN  (i'm being sarcastic again).


Here is the list of over 300 Signs, Symptoms, Associated Disorders and Complications directly or indirectly resulting from celiac disease and gluten sensitivity.
We were the first to present this information in our comprehensive celiac disease reference, “Recognizing Celiac Disease.” This list is now being used by celiac disease centers, national celiac organizations and health organizations worldwide.

Blood System Symptoms

Abnormal levels of blood components and quality of blood cells and plasma, detected by blood studies ordered by a doctor.
  • Anemia, Folic acid
  • Anemia, Iron
  • Anemia, Vitamin B12
  • Anti-Endomysium Antibodies (EMA)
  • Anti-Gliadin Antibodies (AGA)
  • Anti-Tissue Transglutaminase Antibodies (tTG)
  • Associated Autoimmune Antibodies
  • Bone Alkaline Phosphatase Enzyme, Elevated
  • Calcium, Low
  • Cholesterol, Low (below 156)
  • Coagulation Factors, Low
  • Copper, Low
  • Hemochromatosis
  • Glucose, Low or elevated
  • Homocysteine, Elevated
  • Hyperprolactinemia (elevated prolactin hormone)
  • Hypoprothrombinemia
  • Idiopathic Thrombocytopenic Purpura
  • Liver Enzymes, Elevated
  • Macroamylasemia
  • Macrocytosis
  • Macrolipasemia
  • Magnesium, Low
  • Neutropenia
  • Phosphorus, Low
  • Plasma Proteins, Low
  • Potassium, Low
  • Prolonged Prothrombin Time
  • Transient Erythroblastopenia
  • Zinc, Low

Body Composition Symptoms

Disorders of the body as a whole.
  • Anorexia (Poor appetite)
  • Appetite, Increased
  • Cachexia (Wasting of the body)
  • Loss of Vitality
  • Obesity
  • Weight Gain, Unexplained
  • Weight Loss, Unexplained

Cardiovascular System Symptoms

Disorders of the heart and blood vessels.
  • Angina Pectoris
  • Aortic Vasculitis
  • Atherosclerosis
  • Cardiomegaly
  • Coronary Artery Disease
  • Easy Bruising (Ecchymosis)
  • Hypertension
  • Idiopathic Dilated Cardiomyopathy
  • Nosebleeds, Unexplained

Digestive System Symptoms

The following symptoms in this section may be present alone or in any combination in celiac disease.  They result from inflammation, damage,and interference with normal function caused by gluten exposure in the digestive tract itself and/or nutritional deficiencies.  As you see, problems can develop not only in the small intestine where inflammation can be intense, but also in other areas such as mucosal tissues of the mouth, esophagus, stomach and colon.
  • Abdominal Distention (Bloating)
  • Abdominal Pain
  • Adenocarcinoma of the Small Intestine
  • Aphthous Ulcers (Canker sores in mouth)
  • Autoimmune Cholangitis
  • Beta Casein Enteropathy (Cow’s dairy intolerance similar to celiac disease)
  • Bleeding, Unexplained
  • Cancer of the Esophagus
  • Cancer of the Pharynx
  • Candida Infections
  • Carbohydrate Malabsorption
  • Cheilosis (Red lips, cracking/ oozing at corners of mouth)
  • Colitis, Collagenous
  • Colitis, Lymphocytic
  • Colitis, Ulcerative
  • Colonic Volvulus (Loop of intestine twists causing strangulation of intestine)
  • Constipation 
  • Constipation Alternating with Diarrhea 
  • Crohn’s Disease
  • Defective Tooth Enamel (Yellow, white spots, missing enamel)
  • Delayed Gastric Emptying (Early fullness after eating) 
  • Diarrhea, acute (Also called celiac crisis)
  • Diarrhea, chronic
  • Duodenal Erosions in the Second Part of Duodenum (Small ulcers)
  • Dysphagia (Difficulty swallowing)
  • Edema of Small Intestinal Lining
  • Esophageal Small Cell Cancer 
  • Esophageal Motor Abnormalities (Poor muscle activity/coordination)
  • Gas
  • Gastric Ulcer (Stomach ulcers)
  • Gastric Ulcerations
  • Gastritis, Collagenous
  • Gastritis, Lymphocytic
  • Gastro-Esophageal Reflux Disease (GERD)
  • Gastro-Intestinal Occult Bleeding (Blood in stool that is not visible to naked eye)
  • Gluten Sensitive Enteritis
  • Gums bleeding/ swollen (Purplish in adults/ red in children)
  • Heartburn
  • H. Pylori Bacter (Infection of the stomach)
  • Impaired Gall Bladder Motility
  • Irritable Bowel Syndrome
  • Jejunitis, chronic
  • Lactose Intolerance (Gas, bloating, loose stools from milk)
  • Laryngospasm
  • Leaky Gut Syndrome
  • Lymphoma
  • Malabsorption of Nutrients 
  • Maltose Intolerance (Gas, bloating, loose stools from maltose, a simple carbohydrate)
  • Nausea
  • Oral Mucosal Lesions (Mouth lesions)
  • Plummer-Vinson Syndrome
  • Post-cricoid Cancer 
  • Primary Biliary Cirrhosis (Bile backs up in liver)
  • Primary Sclerosing Cholangitis (Scarring of bile ducts in liver)
  • Small Bowel Intussusception (One loop of intestine slips into another)
  • Small Intestinal Bacterial Overgrowth
  • Steatorrhea (Pale, smelly, floating stool hard to flush or sticks to toilet)
  • Sucrose Intolerance (Gas, bloating, mucous in stool from sugar)
  • Tongue (Beefy, red, smooth, burning)
  • Tongue (Fiery red, smooth, swollen, sore)
  • Tongue (Magenta, swollen)
  • Tongue (Pale, smooth, burning)
  • Vomiting

Glandular System Symptoms 

Disorders of the glands.
  • Addison’s Disease (Adrenal gland failure)
  • Autoimmune Hepatitis
  • Autoimmune Thyroiditis (Hypothyroidism)
  • Diabetes Mellitus Type I
  • Diabetic Instability
  • Gastro-Intestinal Complications of Type 1 Diabetes
  • Grave’s Disease (Hyperthyroidism)
  • Hepatic Granulomatous Disease
  • Idiopathic Hypoparathyroidism
  • Non-Alcoholic Fatty Liver Disease
  • Pancreatic Insufficiency
  • Parathyroid Carcinoma
  • Primary Hyperparathyroidism
  • Secondary Hypoparathyroidism

Immune System Symptoms 

Disorders of antibody production.
  • Allergic Rhinitis
  • Antiphospholipid Syndrome
  • Asthma
  • Autoimmune Disorders in Celiac Disease
  • Autoimmune Disorders in Dermatitis Herpetiformis
  • Autoimmune Polyglandular Syndromes
  • Common Variable Immunodeficiency
  • Food Allergies, IgE and non-IgE Immune Responses
  • IgA Deficiency
  • Sarcoidosis
  • Sjögrens Syndrome
  • Systemic Lupus Erythematosus
  • Urticaria, chronic (Hives)

Integumentary System Symptoms 

Disorders of skin, hair, and nails.
  • Alopecia Areata (Patches of hair loss)
  • Alopecia, Diffuse (Balding)
  • Cutaneous Vasculitis
  • Cutis Laxa
  • Dermatitis Herpetiformis
  • Dermatomyositis
  • Eczema
  • Edema (Swelling)
  • Eythema Elevatum Diutinum
  • Erythema Nodosum
  • Follicular Hyperkeratosis (Dry rough skin/ plugged hair follicles on body)
  • Ichthyosis, Acquired
  • Itchy Skin Rash
  • Hangnail
  • Koilonychia (Thin nails that flatten, ends progressively turning up instead of down)
  • Melanoma
  • Nails, Dry and brittle that chip, peel, crack or break easily
  • Nails with Horizontal and Vertical Ridges/Fragile
  • Nail with Rounded and Curved Down Ends, Dark, Dry
  • Nails with White Spots
  • Nails with Splinter Hemorrhages  
  • Pityriasis Rubra Pilaris
  • Prurigo Nodularis (Hyde’s Prurigo)
  • Psoriasis
  • Scleroderma
  • Seborrhea
  • Thin hair
  • Vitiligo
 

Lymphatic System Symptoms 

Disorders of the lymphocytes (white blood cells), lymph nodes and spleen.
  • B-cell non-Hodgkin’s Lymphoma
  • Cryptic Intestinal T-cell Lymphoma (Refractory Sprue)
  • Enteropathy Associated T-cell Lymphoma (EATL)
  • Extraintestinal Lymphomas
  • Intraepithelial Lymphocytosis in Small Bowel Samples
  • Lymphadenopathy
  • Mesenteric Lymph Node Cavitation
  • Hyposplenism (Atrophy of spleen)

Muscular System Symptoms 

Disorders of muscle structure and function.
  • Hypokalemic Rhabdomyolysis (Acute, severe potassium deficiency)
  • Muscle Pain and Tenderness
  • Muscle Spasm and Cramps
  • Muscle Wasting
  • Muscle Weakness
  • Osteomalacic Myopathy
  • Polymyositis
  • Tetany 

Nervous System Symptoms 

Disorders of nerves, brain and spinal cord structure and function.
  • Anxiety
  • Apathy
  • Ataxia, Gait Disturbance
  • Ataxia, Gluten
  • Ataxia, Progressive Myoclonic
  • Brain Atrophy
  • Cerebral Perfusion Abnormalities (Poor blood flow)
  • Chonic Fatigue Syndrome
  • Chorea
  • Cortical Calcifying Angiomatosis
  • Dementia
  • Depression
  • Epilepsy
  • Fatigue/ Lassitude
  • Headache
  • Inability to Concentrate
  • Insomnia
  • Irritability
  • Migraine
  • Multiple Sclerosis
  • Nervous System Disorders
  • Peripheral Neuropathy
  • Progressive Multifocal Leukoencephalopathy
  • Schizophrenic Spectrum Disorders
  • Tremors
  • Vasculitis of the Central Nervous System

Pulmonary System Symptoms 

Disorders of lung tissue and broncheal tree structure and function.
  • Bronchiectasis
  • Bronchial Pneumonia
  • Idiopathic Pulmonary Hemosiderosis
  • Increased Pulmonary Permeability
  • Increased Susceptibility to Tuberculosis
  • Lung Cavities or Abcess
  • Non-Response to Tuberculosis Treatment
  • Pneumococcal Septicemia 

Sensory System Symptoms 

Disorders of sense organ structure and function.

  • Bitot’s Spots (Foamy patches on whites of eye)
  • Blepharitis
  • Bloodshot Eyes
  • Blurred Vision
  • Cataracts
  • Keratoconjunctivitis Sicca
  • Keratomalacia
  • Nightblindness
  • Ocular Myopathy
  • Smell, Loss of
  • Taste, Loss of
  • Uveitis, Bilateral
  • Xerophthalmia

Skeletal System Symptoms 

Disorders of bone, joints and teeth.
  • Bone Fracture
  • Bone Pain
  • Enteropathic Arthritis
  • Osteitis Fibrosa
  • Osteomalacia
  • Osteonecrosis
  • Osteoporosis
  • Psoriatic Arthritis
  • Recurrent Monoarthritis

Urinary System Symptoms 

Disorders of kidneys and urinaty tract structure and function.
  • Hypocalciuria
  • IgA Nephropathy
  • Kidney Stones
  • Urinary Tract Infection

Reproductive System Symptoms in Females 

Disorders of organ structure and function.
  • Amenorrhea (Absence of menstrual period)
  • Early Menopause
  • Infertility
  • Late Menarche (Late start of menstrual periods)
  • Premenstrual Syndrome
  • Dysmenorrhea (Painful menstrual periods)
  • Dyspareunia (Painful intercourse)
  • Vaginitis

Reproductive System Symptoms in Males 

Disorders of organ structure and function.
  • Hypogonadism
  • Impotence
  • Infertility
  • Sperm Abnormalities

Reproduction: Pregnancy, Labor & Delivery and Puerperium Symptoms

Disorders of childbearing.
  • Severe Iron Deficiency Anemia in Pregnancy
  • Short Duration of Breast Feeding
  • Miscarriage
  • Complications During Pregnancy, Labor and Delivery
  • Complications After Childbirth

Zygote Development Symptoms

Disorders of chromosomes.
  • Down Syndrome
  • Turner’s Syndrome

Fetus Development Symptoms

Disorders of that occur before birth of the child.
  • Congenital Anomalies
  • Intrauterine Growth Retardation
  • Cystic Fibrosis
  • Spina Bifida

Child Development Symptoms

Disorders of children that occur after birth.
  • Autism and Learning Disorders
  • Attention Deficit  Hyperactive Disorder (ADHD)
  • Cancer Predisposition in Children
  • Chronic Bullous Dermatosis
  • Delayed Puberty in Boys
  • Delayed Puberty in Girls
  • Dermatitis Herpetiformis
  • Developmental Delay
  • Failure to Thrive and Growth Retardation
  • Fecal Occult Blood (Blood found in stool that is not visible to the naked eye)
  • Glycogenic Acanthosis
  • Hypotonia
  • Juvenile Autoimmune Thyroid Disease
  • Juvenile Diabetes Type 1
  • Juvenile Idiopathic Arthritis
  • Abnormal Blood Studies
  • Latent Anemia in Enzymopathies of Small Intestine (Lack of enzymes produced by villi)
  • Penicilllin V Impaired Absorption
  • Refractory Anemia (Unresponsive to iron therapy)
  • Osteopenia
  • Rickets
  • Short Staure
  • Stroke in Childhood

Here are some other ways to look at various symptoms :

 Behavioral Symptoms

  • Aloofness
  • Hyperactivity
  • Irritability (Common in children with celiac disease)
  • Impatience
  • Lack of Desire to Get Things Done
  • Lack of Feeling
  • Restlessness
  • Timid Behavior
  • Violent Behavior

Neurological Issues

  • Anxiety
  • Apathy
  • Bipolar disorder
  • Depression
  • Difficulty Making Friendships
  • Easy Frustration and Anger
  • Nervousness
  • Panic Attacks
  • Sense of Worthlessness
  • Overly Self-critical
  • Hysteria
  • Hypochondria

Cognitive (Thinking) Symptoms

  • Confused/ Faulty Thinking
  • Confabulation
  • Delusions
  • Dementia
  • Disorientation
  • Faulty Learning
  • Hallucination
  • Inattentiveness
  • Loss of Memory
  • Loss of Immediate Memory
  • Poor Memory
  • Reduced Learning
  • Slow Thinking
  • Scattered Thinking

Sunday, April 24, 2011

Fantastic

Dear Mom,

It was a great weekend. Thanks for hosting and being SO helpful with my (and everyone's!) food allergies, preferences and intolerances.  I hope that somewhere within all the efforts you put towards the meals we ate-you also enjoyed some of the food. (??)  You don't know what it means to all of us to come celebrate a holiday with all the family we love and enjoy, meanwhile being able to eat and not worry, starve or feel guilty.  So thank you.

Tonight I just didn't feel like cooking.  I am/was tired.  Andy and I talked about it and decided that even though you had sent us home with ample leftovers, we just wanted a big plate of Mexican food. Yum.  But we forgot that it was Easter (maybe because Andy worked today).  So everything was closed.  Frustrating.

So we went back to the leftovers.

HOLY FANTASTIC-O!

The main reason for this letter is to let you know that the gluten free sub bun/roll you sent me home with was SO delish.  I made it into garlic bread.  Then I put 2 small pieces of the pork roast on it, with a pickle and some lettuce.  The consistency was perfect.  There was no weird after (or during) taste.  It would make a perfect hamburger or chicken sandwich bun.  Where oh where did you get those?  Is it a hassle to order it online and have it delivered? Do share. 

But overall-Thank you! 
Love,
The Youngest

Friday, April 8, 2011

Overwelmed

There are SO so SO so SO so So many gluten free blogs.
I thought I was looking at 3 that were favorites.  and THEN! I went and googled specific ingredients to make a few new recipes and oh my goodness. A whole bunch of new blogs came my way.

I wish I could have a career in reading (yes just reading, not writing) gluten free blogs.  Then I'd have time to bookmark my favorites. Comment on interesting things. Develop relationship with other gluten free bloggers and maybe try out some of the recipes.

Some day...in la la land that could come true. For now...I'm just trying to figure out which few blogs I can keep up with.

Wednesday, April 6, 2011

Rice Krispies

Finally!  Rice Krispies may be gluten free in the future.  In my mind, it's ridiculous that they aren't right now.  I'm super duper excited about this.  It's not a favorite cereal of mine, but it's another option that doesn't cost $5.50 a box.  And it's an easy one to add fruit too. Oh yeah and the added bonus of rice krispie bars!!!!

Check this out.
 

Could it be???

I have a few people in my life who continue to hope for me.  These folks really want me to see some positive results from this difficult, no impossible, gluten free diet.   Ok-it's NOT that impossible.
So far I've had "this or that" come up.  Which means, I've been having a hard time assessing if there have been any physical or mental changes in me. 

But I'm ready and confident to make my statment.

I've noticed one change. And it's a good change! Is it worth the diet?  I'm working through that mentally. 

I have more energy.  Not a ton more. Not a lot more. But more.  And that IS worth it, but I was hoping for whiter teeth, thicker hair, a little bigger chest, less sweating, decreased worrying, oh and a 5 lb wt loss.  That being said, I'll take the change in energy level as a positive thing (for now....still hoping for those other things!).  I'm noticing it mostly in the afternoon which is usually when I felt heavy and weighed down.  Now I feel like I won't collapse after lunch like I used to if I had the chance. I still dread getting up in the morning and could sleep an extra hour or two. But once I'm out the door, I feel lighter on my feet. 

There's your update folks.  The first real positive change since I started this diet. 

Thursday, March 17, 2011

another fun box...

I used the gift certificate my friend gave me for The Gluten Free Mall.  It was SO much fun to peruse through the website and order some fun items.  I posted the list before. 
They got my message (I ordered online) and delivered appropriately since I am not home when boxes get delivered. This made me happy because often times these little things get missed or companies don't "go through" with this type of thing.
Here is what I got.  I'm not going to tell you how much the gift certificate was for but it was OVER the top. Thanks friend!!!  When I looked back at the picture I thought it was silly that it looked like so little for the huge gift that it really is. I am extremely  appreciative that I have such nice friends and family who have helped me with all of this when the gluten free foods are so expensive.  You don't know how much joy it brought me to come home to that box and how fun it will be to open each new item.

Thursday, March 10, 2011

Waiting for delivery...

Dear Colleen,

Thank you for the:

  • Snyders GF Pretzels x 2
  • Dr. Schar vanilla sandwich cookies
  • Pastato Panda Potato GF mac n cheese
  • Dr. Schar Spaghetti
  • Pastariso Lasanga
  • Grainless Baker GF Stuffing
  • Dr. Schar GF Crispbread (Fancy crackers)
  • Glutenfreeda Variety Pack of GF Oatmeal
  • Dr. Schar Chocolate Dipped GF Cookies
  • Wellaby's Classic Cheese GF Crackers
These are all brand new products to me and I am  very excited to try them.  Normally I would order more food/meal type things but they wanted to ship bread frozen which had a lot of stipulations.  So I was tempted to splurge and try out some different brands of cookies and crackers.  I'm excited to try the Snyder's pretzels since they are a popular brand.
You are such a good friend.
I hope when I see you next I can share a gf cookie or 2 with you!
Love,
Me

Tuesday, March 8, 2011

All that gluten free stuff...

Hi,
How are you? I am fine.
Love,   Raina

That is how I used to start out every snail-mail letter I wrote growing up!  I think it's funny that I was always "fine".  But just wanting to let you know that tonight I am just fine too.  I haven't updated on gluten free stuff so here goes.

Over the weekend I went out to dinner with my parents.  Plans changed at the last minute and on the way to the restaurant I announced "I'm doing exactly what the books tell you not to".  I went out without researching the restaurant because that is the part that changed.  I didn't call ahead or check online to see if they had anything gluten free. I also went out without eating (only a banana).  BUT! It went well. The waiter came out to tell me that what I had ordered did in fact contain gluten so we switched my order and wa-la! No sick tummy the next day.

My friend sent me a box of gluten free goodies yesterday.  All the way fro MO.  What a friend. What a surprise after a 10 hour work day.  It had a cookie mix, cake mix, soup, a pancake/baking mix etc etc etc.  So special. Thanks Lynne!!!

2 weekends ago I travelled to Minnesota.  My sister and mom really did a good job helping me fit right in at all the meals.  The hardest part was watching them eat the dinner roll.  But other then that-I was made to feel such a priority with my gf-ness. Thanks guys!  On the way home we stopped at Subway and I had a salad. It was yummy.

Today I got sick 15 minutes after eating my lunch.  At work we had an in-service and lunch was provided and it was gluten free.  They said it was gluten free.  This  has not really happened to me-within 15 minutes I was sick. Strange.

Success with the Tinkyada pasta.  But it takes a long time to cook.  Last night after my pot of pasta was boiling and Andy/Elis was just getting started...I noticed that the spaghetti sauce said "wheat" on the label. Annoying.  If I had a garden year round and it wasn't already verging on 5:30 and Eli needing to be snoozing by 6:30 I would love to have had the energy (after a 10 hour work day) to make my own sauce. RIGHT?  Oh well. So I took out another pan and had 2 sauces cookin' too.  Then I had to switch out a pan so I could steam the cauliflower.  It turned out great. But then I had to do the dishes because our dishwasher is broken.  Spaghetti being one of my favorite meals was giggling at me while I cursed all the dirty dishes I had to wash.

Andy, Eli and I went to a new gf store this weekend. It was small but cute.  I accidentally picked the wrong frozen pizza crust to try but I already baked one and it tasted delish! Lucked out.  While in the store, a mom was helping her (maybe) 12 year old son pick out his gluten free goodies. I wanted to stare and watch like I was at the zoo.  She asked "Do you want bagels? What shape pasta do you want? Have you had these before?" and he would quietly reach into the freezer for chicken fingers or something.  Wow. Just so interesting to me. 

hmmm....what else? I think that's about all for right now. Thanks for listening.

Wednesday, February 16, 2011

Tried the....

-gluten free rice krispy bars. ick.  they are also dairy free. maybe that is why they are ick?  They are tolerable as a food-edible item. but they are NOT rice krispy bars. HA!

-gluten free microwave popcorn.  it was also dairy free. i usually make air popped popcorn, but these cute little individual bags were given to me as a gift.  whatever they use for butter flavoring that is non-dairy didn't do the trick. starting to feel sorry for my brother who is dairy free, however i bet he doesn't eat things that are artificially dairy-flavored!

-gluten free soy sauce.  success!

I had a patient today who was asking about  gluten free diet.  she doesn't have celiac disease but someone in her family suggested she follow it for no reason.  it was my first time feeling confident talking about celiac disease with a patient. in the past, when i had a patient on a gluten free diet i was always never sure what i was really saying.
I attempted to buy this black bean sauce for stir fry that was advertised at Whole Foods as gluten free. Or so I thought. darn it when I got home all excited to use it tonight, i checked the label and it had wheat. boo. it was probably a 6-10 dollar jar of sauce.

on another note...i was sick twice today.  wonder what it was....i could spend hours tracking and thinking and wondering. maybe it wasn't related to gluten at all?
i'm hosting book club tomorrow at my house. andy is downstairs making the cookies. real cookies for my guests. i asked him not to bake them until i was upstairs so i wouldn't have to smell them. what a man!

Tuesday, February 15, 2011

4-everrrrrrrrrrr

Forever

F
O
R
E
V
E
R


Forever   Forever  Forever

Forever
Forever


Forever

So....no matter how I look at it...it seems like a long time.
Right?

Wednesday, February 9, 2011

updates, thoughts, happenings

just random thoughts

1. This weekend Andy and I went out to 2 different restaurants to try being gluten free in public. I was a little anxious. I think Andy was just excited to eat out of the home and be on a "date".  The first restaurant was pretty good.  We went to the bar before sitting down and I asked the bar tender if the Bloody Mary Mix had gluten in it. He shot back fast and furious "I don't know. Probably".  It seemed insensitive to me, because it truly was my first time requesting.  I looked at Andy (probably with scared eyes) and asked if I could read the label.  He was nice after that.  Our waitress sat down in the booth with me to help me look at the menu which was really personal and nice.  She also told me she would not bring out the fresh bread and butter. VERY nice.  The 2nd place we went could not print their gf menu. I thought that was weird.  But we had good service.  Saturday afternoon I did get a little sick and I'm guessing my food had the "seasoning" on it that they said gf-ers couldn't have.  I could taste the spice/seasoning on my food so maybe they forgot? Or maybe it's just medication I'm on.

2. Yesterday, there was a kit kat in my presence (my very favorite candy) and cheese-its.  Both were hard to watch.

3. Andy's birthday was yesterday.  We enjoyed a yummy meal together and he ate his chocolate cake.  That part didn't bother me.  He did make himself an (unhealthy) appetizer that smelled SO good. I couldn't have it and stared at it on the stove.  Instead of staring...I took over on Eli's bath and told Andy to EAT. 

4.  So far I have no shed too many tears over this, but I still don't think it has hit me that I can't eat some of my favorites ever again.  I still think it's so hard to wrap my head around the aspect of forever.  A choice made for me.....and it's forever.  I just can't picture not having that option.  I feel like it a fad diet. Like at any moment I can say-forget it. Done.  Moving on and give me that bagel. 

5.  I'm struggling a bit with breakfast. I'm having cereal every day. I love cereal but I also love the smell of toast in the morning.I always loved toast.  I have been eating 1 or 2 yogurts every day.  And Andy has been SO nice to leave all the leftovers for me to take in my lunch. I'm starting Elisabeth Hasselbeck's book. It's been recommended by a few. 

That's about all. My appointment with the gi doc is next week. Andy is going to go with me. What should I ask him?

Saturday, January 29, 2011

Delish.....

I've been checking out this gluten free blog: glutenfreeislife.  She features all gf goodies, recipes and menu ideas.
These look awesome.  
021
Click here to find out how she did it!
I forgot about little things like icecream cones, even some icecream is not gf-but she mentions that magic shell to coat the inside of the cone is gf. Heaven.
This looks like a day long project-where I could make 12, package them correctly and freeze!

Wednesday, January 26, 2011

nothin....and more pity-beware!

I can't be positive (even fake positive) about being sick and having celiac's disease.

My stomach turns at the thought of eating something that is supposed to taste like my comfort foods, but doesn't really do it.
I'm not hungry. But Andy keeps reminding me that I have to eat.
I really miss Mrs. grass soup and saltines. The way a saltine feels in my mouth is not something that can be duplicated by any gf cracker I've come across. They are all so crunchy my brain ricochets off my skull while I chew them.
A lot of the gf foods are tolerable, but sort of have a taste like I'm eating in a foreign country. And when I'm not feeling good, it's hard to convince myself to do it. So yes, this is another pity post.
Mashed potatoes and white rice are the 2 things that will still taste the same...

Since I'm in bed I sent Andy to his restaurant of choice and told him to get whatever favorites he wants. I can't smell so whatever he comes home with should not waft upstairs and bother me.

On another note-the pharmacists today were not that helpful in deciphering if my medications were gluten free. They didn't offer to call the company for me or encyclopedia-brown-it and figure it out for themselves. I was too sick to really care and am chancing it. But I am starting to get more comfortable talking about it with people I don't know. Nobody has looked at me like I'm crazy.

Since I was sick last weekend, I didn't go with Andy to visit his brother-which means I never made it "out" to eat. This weekend....pending I have an appetite and I feel better, I am challenging myself to going to a restaurant. I've been hearing little things here and there about different restaurants and chains that have a gluten free menu.

My brother has been trying some of the Bob's Red Mill products. It has made me so happy to get emails telling me what he has thought of them. Both times he has mentioned that his girlfriend, Liz, has not liked the product. This makes me happy because I don't want the added pressure that I, too, have to be impressed by it if I'm not. I am excited to try the product, but knowing that others might think it's not as good as the real thing, makes me feel HUMAN. Thanks Liz!

My mom had her celiac panel done. They didn't do the genetic portion, but they did the antibody test. Of course it came back normal! But it was fun to compare our results.

That's it.
That's all for now.

Thursday, January 20, 2011

pizza, bread and noodles

Gotta love the title of this post.  No, not another pity post.

1. Andy bought me gluten free Bisquick mix.  We tried pizza last night.  He liked it (or claims to!).  I thought it was ok.  I said "I would eat this, but it isn't pizza".  He didn't understand what I was getting at.  Yes, it was edible without complaint. But I wouldn't call it pizza because it is not what pizza is in my head and heart (remember, I worked at pizza hut for >4 years).  The crust had the consistency of corn bread. It was gritty. The flavor was ok, but on my tongue it was like wet sand.  We need to keep trying other pizza crusts.

2. The bread I made a few nights ago sits on the counter. Andy loves it (of course, he loves everything gf).  It's very dense.  I could not eat a sandwich of it.  I know that homemade bread is dense but this is so heavy and the flavor is just a little off.  I have tried it toasted and even under the broiler as garlic bread.  Both times Andy finished mine for me.  I'm determined to make my own bread....but the Udi's is MUCH better.

3.  Tonight was our first experiment with pasta (except for when my mom made that gf spaghetti bake).  We made corn/quinoa pasta.  It was elbow shape noodles.  I smothered (yes smothered because I was worried about flavor) Alfredo sauce which I usually only like very light.  We also added some chicken.  It was great.  This was probably the best gluten free product I've had so far and I'm so happy because -darn it-I love my noodles.  I did try some plain as well and they were also tolerable, so I don't need to add that big, heavy, fatty sauce to eat it. I'm very excited.  The boxes of pasta are much more expensive ($3.50-$5 a box vs. regular pasta 2/$1.00) so Andy made his own regular noodles and we were very careful to not cross contaminate.

4. My mom sent me these cards in the mail that have a description of a gluten free diet to put in my wallet.  When I'm at a restaurant I can pull that out if it appears the waiter/server/chef doesn't know what it is all about. Very cool. Andy put one in his wallet too-cute!

5. I've tried the Woodchuck beer and the New Grist.  The first New Grist that I tried I really enjoyed. I tried it again last night and did not like the flavor as much. I think it is because the first night I was gossiping heavily with 3 friends and  didn't pay attention as much-so I know in social settings I can totally tolerate the New Grist.  Not sure if I'm a cider girl-but the Wood Chuck could grow on me too. 

6. This weekend we are going to stay overnight at my brother in law's house. It makes me nervous because it could turn into 3-4 meals away from home.  I haven't gone out to eat yet and have only eaten at one other friends house (who happens to be a dietitian and helped in MAJOR ways).  I think we are going to try restaurant eating Saturday night and I'm prepared to be bold and understanding. 

So here's the real question....for all of you who actually have read this far into this totally boring post.  We bought a 10 lb bag of potatoes thinking we'd be eating them all the time since I can't have noodles.  Since, we have had potatoes only once.  So now, here sits a huge bag of potatoes.
2 questions for you.
1. What recipes do you know for potatoes that you can make ahead and freeze?
2. Where do you store your potatoes? fridge? counter? floor? cupboard?  

Happy Friday tomorrow.

This just in....

I waited all week for today to arrive.  Thursday....ahh good old Thursday. It was the day the receptionist at Dr. B (eli's pediatrician) said I could call back.  Wednesday I thought it was Thursday. Thursday felt like Wednesday. Everything was complicated because I had an intern with me at work, which made it difficult to make a "personal" call. But what did I care? She was sitting right next to me when the e-mail came through from my gi doc diagnosing me with celiac's.  (awkward!)
It took ALL day for me to finally get Eli's results. I had to make many phone calls and I left work almost in tears as I still didn't have an answer.  As Andy and I made our gf dinner, the phone rang.  I couldn't get to the phone....was it in my pocket? jacket pocket? on the counter? in my purse.  Andy couldn't believe it.  It was either the doc or my sister in labor-both reasons to scavenge everywhere and find that phone!  It was the nurse. She apologized for all of the confusion.  The hospital had faxed over different lab results from October. Regardless---this just in! Eli's blood work showed no sign of celiac disease!
I jumped up and down, requested the lab work sent to our house and threw Eli in the air.  I told him he could eat cupcakes and pizza! hahaha.  It was great.
I know that if the results would have had elevated antibodies, we would have bonded together over a gluten free diet-but I prefer he bond with his daddy with cake, cereal, fishy crackers and eventually a good ol' miller lite.

Wednesday, January 19, 2011

nothing

nothing
NOTHING
nothing
Nothing
Nothing
nothing today. no phone call. no voicemail. no news.

I hope to have something real to say tomorrow.

Monday, January 17, 2011

Today....

there were no E-bug results...

But a co-worker made gluten free brownies and let me bring a few home. YUM. They were Betty Crocker and very lovely.  Thanks KK!

Andy and I threw together a gluten free dinner and it turned out yummy. I know I can do this....I just wish I had more time to sit down and plan my meals. I know...in time.  I told a co-worker I wish I had a 4 hour chunk of time to lay in bed and stare at the ceiling.  That's how I felt all day today.

Tomorrow morning I will try a slice of my bread-toasted. 
Tomorrow night I get together with a small group of gals and enjoy my first gluten free beer and another new recipe.  Life continues to be so special for me.

Sunday, January 16, 2011

Pins and needles...

Andy and I are trying really hard to be patient.  We have not gotten Elijah's celiac test results back yet.  It's so hard to wait...and wait....no matter the length of time.  Waiting for test/medical results ranks up there with waiting to hear if you got the job, passed the exam, got into your school of choice, if the plus or minus sign will show up on the little white stick, or if you made the team.  These results could make me sigh with relief or could shake our household up even more than it already is.
I keep thinking about how when you have little kids and they get cranky or feisty, giving a small snack can really help calm the mood and keep them "busy".  I am worried that if Eli has to go gluten free, that we will have less options out at restaurants for a pre-meal snack (crackers, dinner roll etc), and we'll have to spend a lot of money to have those gf snacks (instead of cheap-o fish crackers that do the trick) that most likely will end up on the floor, in his car seat or all over the church pew instead of in his mouth. ahhh.  I worry that I will become more of a control freak than I already am-making sure I worry JUST enough that someone isn't giving him something he can't have and also stress that he will be the odd one out at the birthday party and at 21st bday parties-I would hope he wouldn't have to CHEERS "the guys" with a glass of wine.  I know I know I know that things are different these days-there are gluten free beers etc.  But it's OK for me to worry about these things.  I know it is. And any mother in her right mind would.

It's been almost a week. 6 days.  That's how long my EGD results took to get to me too.  But my lab work did not take more than 2 days.  Therefore I'm on pins and needles.  Just waiting for the voicemail from the doctor or the nurse.  This weekend I relaxed about it because I knew I wasn't going to get a phone call on a Saturday or Sunday.  But tomorrow is (the dreaded) Monday, and I could get a call. Or maybe I won't.

Good news, bad news...I just want NEWS.

Highlights from the weekend:
-Peggy made me gluten free white cupcakes (my favorite). They were pretty good.  The flavor was good but the texture of the cupcake felt like cornbread-a little grainy. Very dense.  But loved it. Peggy gave them all to me to take home-unfrosted so I can freeze them and just pull one out on a rainy day. VERY special.
-Did you know that Ore Ida tator tots are gluten free?  Oh my gosh-these are a 1 in every 3 month treat and we enjoyed them tonight!  We never buy potatoes, but now that potatoes and rice will be used more, we have a 10 lb bag of potatoes on our counter.  Now it's time to be creative.
-I went to Outpost tonight.  I still want to hit up Trader Joe's and the Gluten Free Bakery to see what I can find.
-If anyone ever sees the Progresso Brand Cream of Mushroom Soup (it's gluten free!) on sale-let me know.  We only bought 1 last week on sale for $1.  Today they were $2.80.  The gf cream soups are all over 3$ so finding it on sale is awesome.  I will use these in casseroles etc.
-I made my first loaf of gluten free bread.  To be honest-yes it was from a bread mix (though I had to add some ingredients to the mix) and I used a bread machine.  When it comes down to it, it was probably just as expensive as Udi's, but my goal was to find a mix that I liked-and mimic that with the special flours.  There are so many I'm confused: white rice flour, brown rice flour, arrowroot flour, buckwheat flour, corn flour, bean flour, millet flour, potato flour/starch, quinoa flour, sorghum, soy flour, tapioca flour etc etc.  Many recipes from scratch use 3 or 4 as a mix.  First problem-I forgot to look at Whole Foods to see if they have these-but Outpost didn't.  I need to know when I go back to Whole Foods-which combinations I will want to use.  The mix I made used 4 different flours and it turned out ok so I would feel comfortable buying those specific ones. Making my own bread from scratch should save us some money. Andy and I shared a warm piece.  It was dense but tasted ok.  From what I've read, you have to toast gf bread or it falls apart.  Our slice didn't fall apart but seemed rather moist and dense.  We'll see what it is like tomorrow. 
-I bought a few other items: Guar gum, xanthem gum, cider vinegar, yeast, gelatin, and flax seed. 
-My Goddaughter Lily also gave me a little bag of goodies-a gravy mix, mac n cheese, curly pasta and some snackies.  So sweet of her. 
-I haven't ventured to a restaurant yet. I picked up some gf chips and salsa at a Mexican restaurant and while I waited I almost asked the guys running the register if they had a gluten free menu. I chickened out.  They were young and I was nervous. I don't know why. Maybe I thought they wouldn't know what it is.  I later found out that they actually DO have a gf menu.  I shouldn't be so scared.  At all the grocery stores I've been asking where the section is.  I always wonder if people think I have Celiac disease or if they think I am just "trying" something new.  Most people probably don't think about it at all when someone asks.  They don't really care if it's a choice or a lifelong restriction.  Being a dietitian I don't want that label either.  I think all dietitian's understand this-people looking at what you order, what is on your plate, in your shopping cart etc...There are people who judge us-no matter what we eat.  Some think we eat too healthy, some think not healthy enough.    I don't want to go to functions, parties etc and have people think I'm THAT dietitian that won't eat anything.  I always try to eat everything so that people can't put that speculation on me-that I eat too healthy or not healthy enough etc etc. I'm open to new things but not a snoot about "healthy" foods either.  Now I feel that I could get labeled more "dietitian snooty" if people don't know that I actually have celiacs disease.  I foresee this helping me in the future to be assertive at restaurants and asking for a gluten free menu "Because I have Celiac's Disease."

Looking forward to our appointment with Dr. S.  It's not until the middle of February. I hope he can answer all our questions.
Praying and hoping for E-bug's results tomorrow.

Friday, January 14, 2011

In the mail....

.....came this amazing box from my brother Greg.
It made my day....it was SO fun to open.  Can't wait to start trying some of these goodies.

 Thanks Greg. This is just what I needed!

wow!

My co-worker has had celiac disease since 2002 and has been a WEALTH of knowledge for me. She did a FREE dietitian consult on me!  So much information. She has been leaving me little gluten free treats to try, and has flooded my desk with written materials to read or have.  I appreciate it so much. Part of me thinks that she may be a little glad that she has a "gluten free bud" now in the office.  I will be someone she can share the pain with-meeting eyes when we know an office birthday treat or pot luck is not something we can enjoy.  I hope in the end, I can be an ally while the rest of the NON-gluten free world can be considered the enemy. 
She left me a power point for a presentation that she did a while back and a few slides hit me. I thought WOW in my head. I shared with Andy and thought this was so interesting.
See below:

So how much gluten can someone diagnosed with Celiacs disease have?
Answer: 10 - 50 mg per day             Amer J Clin Nutr 2007, 85: 160-166
            1 slice of Bread 2500 mg of gluten

What does this look like?
~1/50th of a slice of bread = 100 mg gluten (2 x the tolerable amount)
In order to to stay in the safe zone of how much gluten is tolerable you have to cut that small 1/49th of  slice into 10 more pieces.

There ya go. That is why crumbs matter.  I didn't really get it until I saw this. Now I understand why I need my own side of the toaster, cupboard, peanut butter.  The crumbs from Andy's bread could drop into my jar and then get spread on my gf bread. Ha! Would this really happen? Maybe...
but WOW!